Friday, June 12, 2009

Sweet Love

Happy Anniversary!

May 2009


Tomorrow is our 11th Wedding Anniversary, but I am writing today because I plan to be out having a good time tomorrow! :)


We were married on June 13, 1998. 1 condo, 4 houses, 1 dog, 1 cat, 4 fish, 2 cars, 1 van, an SUV, a trailer, countless jobs!, a kidney, numerous vacations, few illnessess, a warehouse of pregnancy tests, and 5 kids later, we are happier than ever! It's been a happy 11 years and I look forward to many more years as our family grows up. I know God is not done with us yet and I'm excited to see what He's got up His sleeve. :)


Our Wedding
June 13, 1998


On Top of the World!
May 2009



May 2009


Our Five Angels
June 2009

Our Five Rascals
June 2009

Happy Anniversary my Darling! I love you so much and have become the woman I am today through your love and support through the years. I am so excited to see what God has in store for us, I'm blessed to walk this journey and serve the King beside you. You are truly a dream come true...

- Julee


Wednesday, June 10, 2009

Huy Family Camping June 2009


Wednesday, June 3, 2009

Chuck Swindoll Today


I just heard that Chuck Swindoll is speaking on children with special needs today. He has a grandchild with special needs.




I haven't listened yet, let me know how it speaks to you!


- Julee

Thursday, May 28, 2009

DREAM BIG




Nathan: Will my water shoes help me walk on water?

Me: Ummmm, I'm not sure about that.

Nathan: Ok.




Sunday, May 24, 2009

Going to the Moon


Nathan has been fascinated with going to the moon lately. He tells me we need a rocket ship to get to the moon. The purpose of this moon mission is to get new Moon Sand for his sand box. He tells me "We need SOMEBODY to go to the moon and get me some moonsand!"

Does anyone have a rocket ship we can borrow? He asked me: "Where can one be on earth?"

So please let me know if you have rocket ship or if you're planning on going to the moon anytime soon. He's also expressed an interest in going to Mars if he can tag along with anyone on a summer trip to Mars.


Rocket ships, moon sand from the moon, mars... none of this is train related and boy is that nice for a change! :)


- Julee



Wednesday, May 20, 2009

Experimental and Strange


I was having an ultrasound on my thyroid the other day and talking to the technician about Nathan and autism, the diet and biomedical interventions. She asked if it really worked and I told her what I tell everyone, for him, it is the difference between having symptoms of autism or not. She was surprised and interested, well not interested but you know what I mean. She seemed like a positive lady that didn't really know anything about autism and she had the mindset of well, if it works, why not? Which is what I always wonder, WHY NOT?


Anyway, she then said that she saw that Jenny McCarthy had a son with autism and she did some experimental and strange stuff and did I do what she did? I said yes, some of it. She tried to lump me with her and asked if it was her protocol I followed. For many reasons, I didn't want to seem like a Jenny follower, like some sort of looney that just saw something on TV and followed blindly, but whatever.


The reason I bring this up is because I carry such a burden with me and I don't know what to do with it, not even on this blog. I see kids with autism and I think that biomedical interventions could help them, but I remain silent. I think people should try the diet really and truly 100%, checking with others to make sure there are no accidental infractions for at least 3 months, but I keep quiet.
Why?
Because I have friends in this blog world that do not do what I do. They feel free to talk about the strange and experimental people who do diet and crazy stuff and yet I can't seem to bring myself to say what I really think. Which is WHY NOT? Why not try the diet? Why not check out what's going on inside their bodies with medical proof and intervene?


I know there is acceptance and inclusion and all of that, but why not make that unnecessary, why not take that need out completely? Does it work for everyone? No. Do I think it would work for many? Yes. Does it cost money, take time and energy? Oh yeah.
Is it all worth it? Absolutely.


I just feel so hopeless when I go and work with students in our special needs ministry knowing what I know, seeing my own son come alive before my eyes. Watching his struggles melt away. Sometimes, I feel like I'd rather not help out, rather not know. It's like seeing someone dying of thirst in the desert, having a gallon of water and offering them a teaspoon of water.


Maybe someday I'll figure out what to do with this knowledge. Maybe someday God will show me what I am to do with this heavy burden. I don't know, maybe it's time to become obnoxious and just tell people what I think, who needs friends anyway??


I do.




Tuesday, May 19, 2009

Don't Think it Doesn't Happen

I saw the top article on CNN today and thought; "It's about time." There are stories about special needs children being abused in school all over the internet and many parents are fighting to get methods changed. One such mother, who now homeschools her sweet boy, is Mrs. C of Homeschooling & Etc. When I read this story, I immediately thought of her.

The CNN article is here:

GAO report: Special-needs kids abused in schools


So sad that the members of society that need the most help are treated the poorest, and they don't have the ability to share what happens to them. That is what is the most scary to me, they can't tell anyone what they've gone through. This is probably what the abusers find authority and power in, nothing they do will ever come out. I hope this article helps parents and school authorities take a closer look at what is going on in their schools.

- Julee

Wednesday, May 13, 2009

Chicken Pox!

Maury: All done

Katie Ann: Only had 2 + a vaccine

Timothy: Has a lot + a vaccine

Nathan: Has a good amount

Josiah: Clear so far + a vaccine



Here's Nathan, he's a scratcher and picker:






Interesting note, Timothy has completely stopped his eye twitching/tic! I think it is the lack of stress from school or the DMPS I gave him during his metals urine challenge.

We're just hanging out at home, we've been here since April 20th...

Call Me Dumb


Scene: Nathan sitting on bed, where he sits when he is sad.

Me: Nathan are you sad?

N: No, I am mad.

Me: Why are you mad?

N: Because Jojo said put down my new pillow.

N: And then I called him a dummy.

Maury: Dumb, call me dumb, dumb, call me dumb.


I still crack up inside when Nathan calls people names, I tell him to use his words don't I? :)

- Julee

Tuesday, May 12, 2009

Habit Training - May 2009


Habit Training – May 2009

Cleanliness

Mom:

Keep bedrooms aired, clean & odor Free

Children will be taught and practice:

  • Begin learning to keep room clean and fresh
  • Laying out and airing out any clothing or bedding that will be used again
  • Proper washing of face, hands and clothing after playing
  • Brush hair
  • Clean finger-nails
  • Wash hands before meals
  • Wash self in bath by age 5 or 6

Watch out! I'm in planning mode again. That means minute details that most people don't think about have to be planned and documented by ME. We're going to be working on the Habit's Training guide from the Simply Charlotte Mason website.

Don't worry, my kids will still have dirty faces and finger nails, it just won't be because they don't know how to be clean anymore. :)

Trust me, there's much more where this came from, I'll post more of my insane planning soon.

- Julee

Saturday, May 9, 2009

SYSTEM FAILURE!


I've been home since spring break waiting for, living with and again waiting for chicken pox. I have 2 unvaccinated children so I assumed it was my lot in life and thought that it was good that they got it young anyway.

What seems really stupid is that Timothy, who is fully vaccinated, now has chicken pox.


The DAN! doctor suspects that he started his ocd, tics, etc. after he was "caught up" in his vaccines when he was 6.I won't even get into the autism/vaccine deal.

You can tell Timothy that he will get a lesser case, but that doesn't really matter to the 10 year old who is missing out on the birthday swim party. It doesn't matter that it's a lesser case when he is missing a week of school, and counts everyday precious because he knows he won't be returning next year. Seems to me, if he was like his youngest brother and got it when he was 2, it might have had less impact on his life...

I followed the system and the system has failed me.

- Julee

Wednesday, May 6, 2009

Timothy's Testing


I am slowly making a plan to go through the huge pile of test kits in my living room. Here is my first attempt:

Timothy Testing
Saturday Morning

5:30 AM - Collect First morning urine
5:30 AM Take DMPS - 45min before breakfast
5:30-11:30 - Collect 6 hours of urine – drink 10-12 ounces of fluid
Here is the list of tests Dr. Woeller ordered for him:


Great Plains Lab:

Porphyrin, OAT & Urinary Peptide (urine)
Kryptopyyrole (urine)
Zinc/Copper Profile (serum)
Glutathione (whole blood)


Doctor's Data Lab:

Urine Toxic Metals
Packed RBC Analysis (blood)
DMPS (Heavy Metal Detox Challenge Test)

Neuroscience:

Neuro Screen/Expanded Urine analysis: Epinephrine, Norepinephrine, Dopamine, Serotonin, GABA, PEA, Glutamate, Histamine, DOPAC, 5-HIAA, Glycine, Taurine
Indicated for: ADD/ADHD, Autism, Mental focus, anxiety, depression, mood disorders.


Lab Corp Blood Work:

Comprehensive Blood Chem
CBC w/diff
Lipid Panel
Liver Profile
Vit D with Whole Blood Histamine

I'm really excited about the Neuro Screen test, that will give us a good glimpse into his levels like serotonin and GABA, etc... things that effect his droopiness, anxiety, OCD.

So, the plan for this Saturday is as far as I've gotten. I have a pile of things to do on my desk, but tomorrow I'll be riding in a hot air balloon with my sweetie so I'll be leaving my messy desk and hopefully getting a view of the big picture. Well, maybe I'll just be sticking my head in the clouds for a while. :)

- Julee

Wednesday, April 29, 2009

Swine Flu Vaccine

Check out Age of Autism's post on the 1976 Swine Flu vaccine.




- Julee

Supplement Schedule


Here is our supplement schedule for Nathan implementing the new Biofilm Protocol. Later I will post the long list of tests the doctor ordered for Timothy. I haven't told him about the blood test yet, but I think it will involve buying a new video game...


Supplement Schedule
Nathan Huy
4/2009

7:00am - Before Breakfast

Interfase Plus – 2 capsules

7:30am - Breakfast

Sonic Cholesterol – 1 capsule
Diflucan ½ dose
Culterelle – 2 capsules
BiotaGen – ½ teaspoon
Liver Life – 15 drops
Cod Liver Oil – ¼ tsp

9:30 - Empty Stomach

Pecta-Sol C – ½ scoop

10:00 – Snack

Brainchild Nutrionals Multivitamin – ¾ tsp
Allimax Liquid – 6 drops


11:30 – Before Lunch

Interfase Plus – 2 capsules

12:00 – Lunch

Sonic Cholesterol – 1 capsule
Diflucan ½ dose
Culterelle – 2 capsules
BiotaGen – ½ teaspoon
MCT Liquid/GSE (Rotate every 5 days) – 1tb/3drops

2:00 – Empty Stomach

Pecta-Sol C

3:30 – Snack

Allimax – 6 drops
Calcium – ½ tsp
Magnesium – 1 capsule
Brainchild Nutritionals Multivitamin – ¾ tsp

5:00 – Dinner

Liver Life – 15 drops
Sonic Cholestrol – 2 capsules
MCT Liquid/GSE (Rotate every 5 days) – 1tb/3drops
Chelate Mate – 1 tb
Selenium – 3 drops

8:00 – Bedtime

Ther-biotic Detoxification Support – 1 capsule
Sacchromyces Boulardii – 2 capsules at bedtime


Now I all I have to do is remember to get back on the 11 days on, 3 days off DMSA schedule. That's difficult for some reason. I might play around with this schedule and see if I can spread out some more supplements over the snack times. He is excellent about taking these, it's just seeing how much I can get away with in one cup of juice and then watching to see if he's finished it or left the bottom where all the supplements tend to settle. Maybe for his 4th birthday we'll have a pill swallowing lesson. ;)


- Julee


.

Woot Woot!

.

I was at the doctors office today and the lady asked me "Are you over 18?"

Oh yeah! Who's going to be 30 next year?!!

Go Julee, Go Julee, Go Julee...



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