
I was having an ultrasound on my thyroid the other day and talking to the technician about Nathan and autism, the diet and biomedical interventions. She asked if it really worked and I told her what I tell everyone, for him, it is the difference between having symptoms of autism or not. She was surprised and interested, well not interested but you know what I mean. She seemed like a positive lady that didn't really know anything about autism and she had the mindset of well, if it works, why not? Which is what I always wonder, WHY NOT?
Anyway, she then said that she saw that Jenny McCarthy had a son with autism and she did some experimental and strange stuff and did I do what she did? I said yes, some of it. She tried to lump me with her and asked if it was her protocol I followed. For many reasons, I didn't want to seem like a Jenny follower, like some sort of looney that just saw something on TV and followed blindly, but whatever.
The reason I bring this up is because I carry such a burden with me and I don't know what to do with it, not even on this blog. I see kids with autism and I think that biomedical interventions could help them, but I remain silent. I think people should try the diet really and truly 100%, checking with others to make sure there are no accidental infractions for at least 3 months, but I keep quiet.
Why?
Because I have friends in this blog world that do not do what I do. They feel free to talk about the strange and experimental people who do diet and crazy stuff and yet I can't seem to bring myself to say what I really think. Which is WHY NOT? Why not try the diet? Why not check out what's going on inside their bodies with medical proof and intervene?
I know there is acceptance and inclusion and all of that, but why not make that unnecessary, why not take that need out completely? Does it work for everyone? No. Do I think it would work for many? Yes. Does it cost money, take time and energy? Oh yeah.
Is it all worth it? Absolutely.
I just feel so hopeless when I go and work with students in our special needs ministry knowing what I know, seeing my own son come alive before my eyes. Watching his struggles melt away. Sometimes, I feel like I'd rather not help out, rather not know. It's like seeing someone dying of thirst in the desert, having a gallon of water and offering them a teaspoon of water.
Maybe someday I'll figure out what to do with this knowledge. Maybe someday God will show me what I am to do with this heavy burden. I don't know, maybe it's time to become obnoxious and just tell people what I think, who needs friends anyway??
I do.